It's how I feel...

It’s been just over a week since my day surgery. It went well – except that I ended up staying in hospital overnight as the surgeon had to do a bit more to me than originally anticipated.

It turns out I have endometriosis, so the surgeon cleared that up, my blood pressure dropped, I was in more pain than I certainly anticipated, and I was admitted. Fortunately I only stayed one night and was able to come home. I am so thankful for Ashford Hospital here in South Australia – the best medical care I could have hoped for.

For the first few days I was limited as to what I could do – in other words it was bed or the couch. And the worst was not being able to have my cats on my lap and not being able to pat my dogs or play with them. I’m feeling much better now and slowly being able to do more and more.

At least I’m feeling better physically.

Mentally?

Spiritually?

I’m struggling big time. It changes from day to day – Wednesday was a not so good day, yesterday was a good day, today is a bad day.

It’s not the fact that I’ve had an operation that has forever taken the choice of trying for a baby again away from me (which is something I have accepted). The reason I am struggling is that I have endometriosis and despite going through IVF and seeing a gynaecologist back around that time with symptoms associated with endometriosis (like infertility – duh!) nobody even bothered to investigate it as a possibility.

If they had – if they only had – it might have been addressed and we might have our child here with us right now. I am really struggling to come to terms with this.

I know that there is a possibility that I still wouldn’t have become pregnant, but the fact that further investigation was not done at the time is just beyond my comprehension. Why didn’t they check? I had the fatigue, I had the pain in my abdomen and lower back, I had the painful period cramp, I had had miscarriages, and I damn well couldn’t have a baby. What went wrong? You know I even recall them saying that I didn’t have it as they couldn’t see it on any scans – well guess what – the only way to truly know if someone has it is to do a laparoscopy (like I had last Thursday).

I am so furious. I have tried not to be angry and to “let it go” knowing nothing will change, but that isn’t working so much and I feel like I am being eaten up inside.  Instead I am going to let the anger and grief and whatever other emotions occur have their space, and deal with them instead of trying to bottle them up. I will cry, rage, talk, meditate, just “be” out in nature, play with my dogs, hug my nephew, throw tantrums, consider how blessed I am, tell Kirby I love him, and swear my head off.

But I’m not going to pretend I’m fine.

That would be a lie – because I’m not.

One thing that I know will help me now is to say this to you who are having trouble having a baby – if you even remotely suspect that you have endometriosis, stand up for yourself and demand that it be investigated. And don’t let them put you off by saying your scans don’t show any signs of it – insist on a laparoscopy.

And please, please, please – if you do go through the tests and find you do have endometriosis, and it is treated, and you end up with that miracle in your arms – please let me know. It would help to mend my heart to know that something good might come from sharing my experience with you. And photos too please! Lots of photos!

My love, as always, to all my readers, and thank you for your endless support.

PMS...

I haven’t written an entry for a while. I had an editing job come through that has taken up a lot of time (lucky I enjoy it!), and I’ve been tired…

And I’ve also had a case of PMS – otherwise known as “Poor Me Syndrome”.

I have been feeling down, feeling that the world is unfair, that nobody likes me – everybody hates me, that the problems of the world are unfixable, that the human race is doomed so why bother trying, etc. etc. Basically I’ve been in a place that everybody in the world finds themselves at one time or another.

I’ve now kicked my own butt and I’m feeling much more positive.

So – what’s happening at the moment?

Next Thursday I’m headed into hospital for day surgery. As my regular readers will know I have had trouble with heavy bleeding every month that has led to me having anaemia. I tried a hormonal thing that didn’t go well and was then referred to a gynaecologist. I saw the brilliant Dr Singla just before Christmas and was given some options to think about and talk about with Kirby.

I will be having a uterine ablation and a bilateral tubal ligation, which hopefully will really help with the bleeding, and thus the tiredness, and thus me being able to live the life I want to.

I’m really excited about how I may very well be after the surgery. I have plans of what I’m going to be doing (I will be easing into things slowly though) including starting Aikido, resuming bike riding, and doing more sewing.

But, I’m nervous as anything about the surgery (especially the anaesthesia). I’ve been under anaesthesia before, but the last time I was under the full one was when I was sixteen. I’ve only been under light general anaesthesia since then (once to remove a ganglion from my wrist and the other times for egg collection during IVF).

I guess it’s normal to be nervous. There are things that can happen under anaesthetic – but then there are things that can happen just by crossing the road too.

But, I cross the road a lot – I don’t go under anaesthesia that often (thankfully!).

Well – if you, my lovely readers, could send me positive vibes across the air waves on Thursday that would be brilliant, and I’ll let you know how it all goes.

Mirena and me...

Before I really start this entry I want to make it very clear that what I am writing applies to me only. In no way is this medical advice or suggesting that what happened to me will happen to everyone. Talk to your doctor about your situation and what is right for you.

Okay – now that’s out of the way!

A few months ago I wrote about how I have extremely heavy periods to the point of being borderline anaemic, and that I was going to try the Mirena (a new wave IUD) (you can read that entry here). Just over three weeks ago I had it put in and initially it was great. No bleeding, no pain (except when it was put in), and I was positive it was going to work for me.

Well – not so much.

 A few days later I started having slight mood swings – I would go from being happy to weeping for no reason that I could identify. It wasn’t nice, but I thought it was just an adjustment to the Mirena and would pass.

But, it didn’t. It got worse. I went from happy to weeping to happy to weeping. I didn’t know what was going on, but I was still determined to keep going with it until my review with my doctor just before Christmas.

But, then... Okay some back story first. I first got depression when I was 22 years of age (so almost 20 years ago). It started soon after a client at my work thought it might be a good idea to stab me when I went on a home visit and I had to fight them off. I ended up leaving that job, but depression came along with me.

Over the first ten years or so I tried many natural therapies and counselling and so on to try and overcome the depression – but, despite people trying to convince me otherwise, mine is a chemical imbalance and I have to be on medication. It took me a long time to accept this and only then was I able to work with my psychiatrist to find a medication regime that really suits me.

Until we found that regime I regularly had an episode of depression (perhaps two to three a year which lasted a month or more at a time). I would be in a black hole where I had no energy, I had no decision making ability (I would wear the same clothes day after day, eat only bread, and stare at the TV unable to change the channel because my brain just didn’t work properly).

Believe it or not – it was the in-between times that were often the hardest; those times when I was sinking into depression and I didn’t want to believe that I could possibly be having yet another episode.

This is still hard to reveal to people, but I did do self-harm. When I first became sick I attempted to take my own life (through overdose) and it was a rose that saved me. I took tablets, then looked out the window and saw the sun shining on a rose – and I realised I didn’t want to never see such a vision again – and I called for help. I also scratched myself on my thighs to the point that I bled, and there are scars where I did so.

Well – I haven’t had an episode for almost four years and I haven’t done self-harm in that time either. My life has been really good – I’ve learnt that I don’t have to be happy all the time and that I don’t have to fight all the so-called negative feelings. I used to be scared that any sadness or anger meant I was getting depressed – but I now realise that they are normal part of the spectrum of emotions (at least most of the time). I can sit with these feelings and not fight them, and I think this has helped, as trying to fight them was exhausting and I believe contributed to my depression.

Okay – back story finished.

Last week I was flipping backwards and forwards between being fine and weeping. I even cried when I was leaving to go to the shops and had to leave my pets – I felt like my heart was breaking. Then, mid last week I went into the bathroom feeling so sad, I picked up some tweezers, and ran them across my thigh. It was only a light scratch, but it shocked me so much. I called Kirby and told him straight away and then told my Mum as well. It was clear that the Mirena was messing with me.

Last Monday I went to my doctor and told her what happened. She immediately said that the Mirena was coming out and that it was going to come out straight away. I was so relieved – especially because she validated that it was the Mirena and I wasn’t going crazy.

The first day after it came out wasn’t easy as I still felt emotional, but now I feel like my usual self again, much to the delight of Kirby, my parents, my parents-in-law, and my dogs and cats too (and of course me!)

Now what is quite confronting is that the options available to me now are going to be much more invasive and more permanent. From what I understand, the options are a uterine ablation (where the lining of my uterus will be destroyed) or a hysterectomy.

I admit – I’m anxious. I have no idea which one the gynaecologist will recommend and which option I will take up.

But, I’ll know soon enough. I have an appointment with a gynaecologist two weeks today and with the one I hoped to see (as she specialises in peri-menopause and all the fun things associated with it).

Well – I think I’ve rambled on enough for today. I’ll certainly let you know how the appointment goes, and in particular how I’m feeling about it all, after my visit to the gynaecologist on the 17^th.

Adieu till next time! And, are you ever going to laugh at my next entry!

Changes...

I went to the doctor recently as I was bleeding excessively around that time…you know what I mean…

I had blood tests and found out that I am on the border line of being anaemic – which, in case you don’t know, means my iron levels are very low and I get very tired. I’m on big time iron tablets now and already, in just a week, I am feeling so much better. It’s only now that I look back that I realise just how awfully tired I have been. It’s a relief, really, to find out that there is a reason as to why I have been so lacking in energy for so long – and that there is something that can be done about it.

The diagnosis I was not expecting, though, is that I am now considered to be in the initial stages of perimenopause. Perimenopause is “around the time of” menopause. It’s like you’re heading toward the ocean for a swim, you’re not quite there yet, but you start to smell the salty air of the sea (but just not as much fun…).

I had actually suspected for a while that something was going on. I’m 41 years old and therefore at the age when things usually start winding down for women.

Ironically – one way to control the excessive blood loss is to have a Mirena (a contraceptive device). Look it up if you want to. Personally, I don’t like the idea much myself and I’ll be looking at other ways first – such as acupuncture. At least now there are choices for me other than to have a full hysterectomy as would have been the case just 15 years ago!

Anyway – I’ve gone off topic as to what I really wanted to write about.

The emotional side.

There’s always been a part of me that believes I could try for a baby again if I chose to. There was still time. I could simply change my mind. Now that choice is being taken away from me bit by bit. I’m getting older and my body is changing and saying to me that the option of having a baby is being removed.

I’ve known for a long time, now, that I won’t be having children – but being able to think that the possibility still exists has provided me with an odd sense of comfort.

I thought I was fine with the whole perimenopause thing – until I started to cry last night after dreaming that we had a child. They were about two years old and I was holding them in my arms as they drifted off to sleep. Our little Jacob had come to visit me in my dreams again.

I woke up with that familiar empty feeling and even reached out in a bit of a panic to try and find our son.

But he wasn’t there.

There are people who say that you “get over” being unable to have children.

But I don’t know that I ever really will. And so long as Jacob keeps visiting me in my dreams I don’t know that I would want to – however bitter-sweet those dreams might be.

She keeps on growing…

“Slipping through my fingers all the time 

I try to capture every minute 

The feeling in it 

Slipping through my fingers all the time 

Do I really see what's in her mind 

Each time I think I'm close to knowing 

She keeps on growing 

Slipping through my fingers all the time 

Sometimes I wish that I could freeze the picture 

And save it from the funny tricks of time

Slipping through my fingers all the time”

“Slipping Through My Fingers” - ABBA

I love this song. It provides a beautiful picture of a mother watching her daughter grow through the years – changing all the time. And it echoes just how quickly childhood goes, especially from the perspective of an adult watching a child grow.

If I had been blessed with a daughter I would have wanted, as much as I could, to teach her to be spiritually and physically strong, to be comfortable in her self and her skin, and to dare to follow her own path. I would have wanted to celebrate the milestones that come with passing from one stage of her life to another. One of the most important rites of passage that I would have liked to celebrate with her would have been her first cycle of menstruation.

Does that sound crazy? After all, a woman’s monthly periods can be annoying, painful, and can sometimes get in the way of life – such as stopping a woman from going swimming or wearing light coloured pants! What is there to celebrate?

There is much to celebrate. In many tribal cultures a woman’s first cycle is celebrated with rituals, with the gathering of women (mothers, grandmothers, aunts, female friends) to share advice, stories, and women’s wisdom. In the West we have lost that. The natural monthly cycle of a woman has been relegated to something that is annoying at best and abhorrent at worst – and definitely something to keep hidden away. I have even heard stories of girls believing they are dying when their first cycle began because they knew nothing about menstruation. It saddens me.

Obviously I don’t have a daughter and so I can’t organize a celebration for her with a group of women who are important to her. I can’t give her a gift from me to commemorate her change from a little girl to a young woman.

But, I do have many nieces, and one has recently started her menstrual cycle. I decided that I could do part of what I wanted to do for my own daughter for her. I wrote her a letter and I bought her a blue moonstone pendant.

Blue moonstone pendant

The pendant and photo is from Village Silversmith on Etsy. 

I chose the moonstone because there is an amazing connection between women and the moon that many people do not know about. The moon’s cycle, and most women’s cycles, are 28 days long. Many women will find that their period begins on or about the new moon or the full moon, and ovulation will occur on or about the new moon or the full moon. Unfortunately, because we use artificial lighting now, some women will find this is not true for them. There are “researchers” who deny that this link exists between women and the moon, but I don’t really care what their “research” says. I know it to be true for me and many others. And the ancient Greeks were onto it – the word menstruation comes from the Latin words menses (month) which comes from the Greek word mene, which means moon. So someone at some time realized there was a connection between women and the moon.

Well – now that I’ve explained all that I’ll get to the real meaning of this entry. I don’t have a daughter, and I can’t do the things that I hoped to do with her.  But I do have other children in my life that I can do these things, albeit adapted, with – such as giving the pendant to my niece and sharing some thoughts I have on menstruation.

I could give up and not do anything because I don’t have my own daughter, but I’d rather look at what I do have. I have so many opportunities to be in the lives of these precious children and to support them and share stories and wisdom (what I have thus far anyway) with them, and encourage them to share their stories and wisdom too. I’m very fortunate.

I just got a text from my niece thanking me for the pendant…she is my smart, wise, funny, and beautiful niece.

I don’t have a daughter, but I still feel the meaning of the song “Slipping through my fingers” when I think about my niece and the many other wonderful children in my life.

I’ll finish off with two more lines from the song…

“I'm glad whenever I can share her laughter 

That funny little girl.”

Resentment

This is probably going to sound strange, but sometimes I resent my uterus. I hate the hormones and mood changes and bleeding. I resent it because the whole thing doesn't have a point. I'll never get pregnant, so what's the point of having a womb that lines and empties every month?

This has especially become the case in the last year or so. I've been diagnosed with Pre Menstrual Dysphoric Disorder (PMDD). This syndrome is controversial in terms of its diagnosis, and it affects something like 2-9% of women. Basically it is PMS, but doubled, tripled whatever. Every month I become extremely irritable, angry, depressed, teary...sounds like normal PMS, right? But, I also struggle with feelings and thoughts of being beyond help and perhaps not being here would be better for everyone concerned. I know that these thoughts aren't real and I'm able to just let them be and don't delve into them – they will pass – but jeez it sucks.

And, the suckiest thing is that having these cycles is they are all for nothing. At one point I even thought about asking for a hysterectomy, but I realise that would not be a good idea (the risks and complications and recovery aren't worth it unless it is absolutely necessary). So, I'll be going on the pill starting from next cycle. I don't want to – I don't like taking medication unless I have to, and I admit I feel like a bit of a failure having to take it.

I think I'm having a bit of a blah day today. I keep thinking that my womanhood is so totally mucked up – I can't have a child, and my menstrual cycle is ridiculous. I think I'm going to have to read my blog entry from April 18th again – I don't feel like much of a woman in tune with her cycles.