Apologies...

Hi everyone - my apologies for not having posted for almost the last month. It's been a difficult month with not a lot of time for writing...

I plan to do a post or two later in the week...one will be about "Stranger Things"...

A letter to the clinic...

Back in March I wrote a letter to our IVF clinic about my endometriosis and how I felt about the fact that they didn’t investigate whether I had it or not, and that if they had, and it had been treated, we may well have our child with us right now.

I didn’t post it!

The letter was teaming with anger and name calling…not exactly the most productive way to get the clinic to understand us and our situation. I meant to write that version of the letter exactly as I did as I needed to vent completely before I could write a letter that could actually be sent to the clinic.

I have written that letter now and emailed it to them last week. It’s below for you to read if you wish - just double click on the picture to open it so that you can actually read it!

Oh – and to date – I have heard nothing from the clinic…not even an acknowledgement that they have received the letter and that it will be given to the person to whom it was addressed.

I wait with anticipation as to what they will say…if they reply that is!

An old soul...

We took the eleven year old daughter of our friends out on Saturday. We went on a dolphin cruise on the Port River in Adelaide and we even saw four dolphins! We were the only ones to see one of the dolphins which was pretty special!

Jess knew that Ari had died and in the car on the way to the Port she said about how sad she was that Ari was gone and how it must be really hard for us.

She said “He was like your child…so he was like my cousin too.”

Okay – I’ve got tears in my eyes right now.

This beautiful, amazing girl said so simply and honestly exactly how we felt about our Ari. He was our child.

She showed more understanding than many adults would and with such simplicity and honesty.

We adore her so much – she is a pure delight in our lives – and I know for sure she is an old soul.

We love you Jess! 

Me, Jess, and Kirby

The Port Adelaide River

One of the tall ships the "One and All"

Jess with her Dad, and Kirby with Ari when he was a puppy.
Jess can't remember a time when Ari wasn't around.

Counselling and stoicism…

Earlier this year I was considering going for counselling after my operation in January. This was due to the surgeon finding endometriosis, which very likely could have contributed to my infertility but was something the IVF clinic we went to never looked into, let alone mentioned. I was feeling very angry and let down and the grief about not having children reared up violently.

I haven’t gone to counselling.

This time I found, after a bit of time, I didn’t feel that I needed it. I found that I have moved through the grief and pain (although it did rise again after my last operation in June) and have come to a point where the anger is not overwhelming and I no longer feel guilty that I let our children down.

It was only since losing Ari that I realised that the need for counselling had gone. This wasn’t because I thought that I needed counselling after losing Ari, but rather that I realised that I know things about myself that I didn’t even know I knew – how’s that for a mouthful!

I used to be a positivity nut – and when things weren’t going my way or I thought they were unfair I would try to control everything to make the situation good again, or I would look for a very good reason as to why things weren’t going my way. I didn’t recognise back then that what I wanted was for things to go my way – I just thought that because I was thinking positively about certain aspects of life that they would happen the way I envisaged.

Even after we couldn’t have children I had this idea of how life was going to be for Kirby and me and that was the way it was going to be. If we couldn’t have children then surely this new vision of life would become a reality? It would be completely unfair if it didn’t!

It didn’t. Well, not completely – things have happened that we hoped for, and things have happened that we wish hadn’t.

My mother-in-law said to me the other day that there is something different about me this year – that I seem more settled in myself. And that is how I feel.

Life has its ups and its downs – I have very little control over it really. I do what I can do and then the rest happens due to events, people – a combination of things really.

I have learnt to accept that – most of the time! The night before Ari died, when he was in the emergency vet overnight and we knew he was very sick, I said to Kirby that it was quite possible that Ari might not come home. Kirby was surprised, I think, as normally I wouldn’t even want to entertain that idea. But, it was a real possibility, even though I hoped that what was wrong with him would be something like a blockage in his digestive system that an operation could fix.

I don’t believe that my “negativity” contributed to the outcome. How could it? Ari already had lung cancer and was going to die. I didn’t create it overnight and change what was wrong with him from something that could have been fixed to cancer. If I had the kind of power to change situations there is so much I would change in the world and I would be a god! And, Ari would still be here because I would definitely have made it so.

So, I’m not sitting here with my thoughts and emotions constantly wondering why it all happened and how unfair it all is and that life is over. Of course, I am grieving – which involves feeling sad, angry, guilty, asking why, etc. but it is a healthy grieving, not an unhealthy grieving. I hope that makes sense.

Stoicism is something I have been reading about lately – once again thanks to Oliver Burkeman! Being stoic – as it is defined today – was not what it originally was. Stoicism is a philosophy and one I am keen to learn more about. One of my favourite quotes from Marcus Aurelius (2^nd century AD) is:

“The cucumber is bitter? Put it down. There are brambles in the path? Step to one side. That is enough without also asking: “How did these things come into the world at all?””

I’ve still got a long way to go in understanding Stoicism, but it seems to be a philosophy that quite possibly will appeal to me the more I delve into it. Or maybe it won’t be. I don’t know and that’s quite okay.

So, with the endometriosis and with Ari and with not having children – I can grieve in a healthy way, and wonder why as part of that grieving, but that is it. I don’t have to keep on asking why and constantly dwell on it and be angry all the time.

The interesting thing about Stoicism is that the recognition of a situation doesn’t mean that you don’t do anything about it – if someone is bullying you, you wouldn’t sit there and say “well this is how it is” and leave it at that. You would say “this is how it is – now I recognise this and I will do something about it.” Perhaps it is in that recognition of the situation that the clarity of whether there is anything that needs to be done occurs, and if so, what that might be? What do you think?

Therefore, I will still be writing to the IVF clinic to ask for an explanation about why they didn’t look into endometriosis – because I believe this will be a healthy thing for me to do and may prevent them from failing someone else in the future as they did us. After that, whether I get a satisfactory answer or not is out of my control, and I will leave it be.

Odi...

After last week’s sad entry I thought I would share with you a video to make you smile.

I was really worried after Ari died that our other dog, Odi, would fret quite badly. But, while he’s been a bit confused and looking for Ari, we’ve had him inside more and he is proving quite the well-behaved indoor dog!

My Mum and Dad bought him a new toy “Giggle” as well, which he absolutely loves. Toys and presents are Odi’s absolutely favourite things! He even tries to take presents that are given to Kirby and me…if he can get to them first!!

So, here is a video of Odi playing with Giggle…

Ari...

Well – this past fortnight has been extremely sad and Kirby and I are still in shock.

Our nine year old German Short-haired Pointer, Ari, was absolutely fine a few weeks’ ago. He played, ate, and was the silly larrikin he always was.

Then about a fortnight ago he refused his dinner, which he had never done before. Breakfast and dinner time were the best times of day for him!

I took him to the vet and it seemed he had a bit of a stomach bug. I offered him chicken and rice (as per the vet’s instructions) when we got back home and he ate that down quite happily. Over the next few days he returned to his normal self.

Then early last week he wouldn’t eat again and I took him back to the vet. The vet took blood and tested it, and everything was fine. He did have a yeast infection in his ears and it seemed he also got something in his eye – so we started treating both of those things.

Ari ate the next day and we planned to take him to the vet for a check-up later in the week.

Then on Thursday night Ari started breathing really heavily (using his entire body to try and breathe), he was having trouble walking, and looked terrible. We rushed him to the emergency vet and they admitted him as he was clearly in pain, and they told us they would do scans on Friday and then call us with the results.

The results were not what we what we ever thought we would hear. Ari had lung cancer.

Kirby and I went to see him. He could barely walk, and just wanted to lie down. He knew we were there, but didn’t wag his tail – he just didn’t have the energy. He couldn’t lift his head, and so I sat down on the floor and lifted his head onto my lap and patted him. Kirby sat down on the other side of Ari and stroked his head.

The vet came in and Kirby went to stand up, but the vet sat down on the floor with us – which was lovely for her to do. She explained it all. He had a large amount of tumours in his lungs, which was why he couldn’t breathe properly, and there was no treatment because of the stage of the cancer. We could have had him go for more scans (more invasive) to make sure it was cancer – but the vet said she was 99% sure it was. The tumours were the shape of cancerous tumours.

We were given time alone with Ari to talk about what we would do, but really there was only one thing we could do. He was in so much pain – it wasn’t fair to keep him going any longer.

The vet came back in and Kirby and I held Ari and patted him as the vet gave him the injection to put him to sleep. He stopped breathing and slipped away from us.

Just as I wrote that last paragraph I felt that tightening in my chest that happens when somebody tells you bad news.

This is just a bad dream…surely? 

I don't want a baby...

Surgery is over and I’m on day six of getting better. It all went well and while I’m a bit sore still and can’t do a lot of physical activity I do feel much better energy wise and therefore mentally and spiritually as well.

My surgeon found more endometriosis – quite significant scarring actually. And it may be that the pain I felt before I will still feel in the future. I’m reading a book called “Endometriosis and Pelvic Pain” by Dr Susan Evans at the moment to get some tips on lifestyle changes I can make to help me be as healthy as possible. I may go to the clinic where Dr Evans works as well as luckily for me it’s here in Adelaide, South Australia.

One thing that concerned/s me a little is that my surgeon said that if the pain doesn’t go away then the next step may be a hysterectomy, but from what I’ve learnt about endometriosis, a hysterectomy won’t do anything to fix the problem. I think I’ll get a second opinion before going down that road as it’s not a simple procedure.

Well, as the title of this post says, I don’t want a baby anymore. Really – I don’t.

I no longer think much about holding our newborn or nursing him or her or changing their nappies.

Instead that longing has been replaced by one for our seven year old child. I wish our seven year old Jacob or Ruby were here with us. I wish they were moving from being a small child to being one with more independence and riding around the wetlands on their bikes with their own friends, who is going to school and learning, and perhaps playing sports. Who knows what they would have been interested in? I wish they were here so we could know them.

In my heart my children are growing up as the years pass by. They were newborns, toddlers, pre-schoolers, and now they are seven years old.

A few weeks ago Kirby and I both had gastro – as we were sitting in the lounge feeling sorry for ourselves I asked Kirby if he thought Jacob or Ruby, given they did not have gastro also, would have looked after us as best a seven year old could do. We both thought that they would have – at least some of the time. 

Then Kirby and I held hands and reflected on what might have been.